Sleepless in Trumpcare’s America

My husband was diagnosed with melanoma in January 2010, the same week Republican Scott Brown won Ted Kennedy’s Senate seat, thus eliminating the Democrats’ brief filibuster-proof majority. (Remember that long-ago nanosecond?) As our lives turned upside down, so did the outlook for health care reform.

Our sleepless nights and worst fears were compounded by the added stress over health care. I’m self-employed, and we depended on my husband’s job for insurance. We were a decade away from Medicare. What if he died, or grew too sick to work?

“Until now, I haven’t had any pre-existing conditions,” my husband fretted as sleep eluded us. “Now I’ll never be able to get insurance on my own.”

My husband and I were lucky — we had money in the bank, a home, jobs, and insurance, at least for the moment. Luckier still, my husband’s melanoma was caught early and successfully treated through surgery. Back then he still would never have been able to get insurance on his own if he lost his job, but we had dodged a bullet.

As my husband and I discovered, though, fortune can change in an instant.

Luckily for us and for tens of millions of Americans, the Affordable Care Act became law not long after my husband’s surgery. We rested easier about the future—ours and our daughters, who could now stay on my husband’s insurance until age 26.

Our lives were upended again in 2012, when I was diagnosed with cancer. Once again we were plunged into the realm of sleepless nights and fear, but thanks to the Affordable Care Act, we at least did not worry about losing access to health care, exceeding annual and life-time caps, or going bankrupt.

My treatment, like my husband’s, was successful, and our lives returned to normal, although with a newfound appreciation that health care should never be a game of Russian roulette or depend on luck, employment status, or wealth.

Thanks to the Affordable Care Act, our eldest daughter–an artist, part-time worker, and student who makes very little money–was able to find quality health care under the ACA’s Medicaid expansion once she turned 26. (We’re in California; she would have been out of luck if she lived in one of the 19 states that have refused to expand Medicaid.)

Also thanks to the Affordable Care Act, in 2015 my husband was able to leave his corporate job to pursue his longstanding interests in research and freelance writing. Employer-provided health insurance had kept him tied to his job, but with the ACA, he could slip those golden handcuffs and we could both be assured of coverage despite our pre-existing conditions. Additionally, the good job with good benefits my husband vacated became available for somebody else. Many of our friends also became self-employed and freed up jobs for others because of the security the ACA brought. We make too much money for any subsidies from the ACA, but that’s as it should be. Although our premiums are expensive, at least we have excellent care. It is not only lower-income people who benefit from the law: Economic vibrancy, flexibility, and innovation are under-appreciated but significant aspects. We are so grateful that President Obama signed the Affordable Care Act. Imperfect as the law is, it is has benefited us and tens of millions of Americans.

But now with Republicans celebrating a legislative milestone in their relentless march against Americans’ health, we are back to sleepless nights.


What has the ACA–and the Republicans’ attempts to unravel it–meant to you?